Tomorrow I'm recording an interview for a local radio station on ME/CFS and I'm really nervous. I've done interviews before, I've talked about my ME before; but I'm feeling a real sense of resposibility doing this particular interview. I was asked to do it by the presenter after I did an interview on Live in Love in Laugh in and Holidays From Home earlier in the year. I really enjoyed the experience and agreed because I want to be able to help raise the profile of what it's really like to live with ME/CFS.
I don't consider myself an expert on ME in general, all I can speak about is my own personal journey with the illness over the past twenty years. I know that ME affects everyone so incredibly differently, I think that's one of the reasons it's so hard to understand and diagnose. If only it was simpler, it would make life better for everyone involved. If only...
There is so much to say about ME, what it's like, how hard it is to live with - I've only got a thrity minute interview; but I'm going to do my best to cover as much as possible and hope that I do it justice. If I can help a few people who are listening, either cope with their own illness or understand somebody else's then it will all be worth it.
Wish me luck!
Claire Wade is the winner of the Good Housekeeping Novel Competition and author of The Choice. She was bed bound for six years with severe ME, trapped in a body that wouldn't do what she wanted. She now writes about women who want to break free from the constraints of their lives, a subject she's deeply familiar with.